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birdwatcherBBC -- Five hundred people in a small Canadian province were diagnosed with a mystery brain disease. What would it mean for the patients if the disease was never real?
Over the coming months, Marrero and the CJDSS scientists began to suspect that instead of a small cluster of CJD patients, the province of New Brunswick might have on its hands a much larger cluster of people suffering from a completely unknown brain disease.
Over the next five years, Marrero's cluster would balloon from 20 to an astonishing 500. But there came no scientific breakthrough, no new understanding of neurology, no expensive new treatments. Instead, last year, a bombshell research paper authored by several Canadian neurologists and neuroscientists concluded that there was in fact no mystery disease, and that the patients had all likely suffered from previously known neurological, medical, or psychiatric conditions. The New Brunswick cluster was, one of the paper's authors told the BBC, a "house of cards".
The research paper published last year could have marked the end of a strange chapter in Canadian science. Except, hundreds of the patients disagree. Defiant, fiercely loyal to Marrero, and backed by passionate patient advocates, they argue that the paper is flawed and reject any notion that the cluster might not be real.
Over the coming months, Marrero and the CJDSS scientists began to suspect that instead of a small cluster of CJD patients, the province of New Brunswick might have on its hands a much larger cluster of people suffering from a completely unknown brain disease.
Over the next five years, Marrero's cluster would balloon from 20 to an astonishing 500. But there came no scientific breakthrough, no new understanding of neurology, no expensive new treatments. Instead, last year, a bombshell research paper authored by several Canadian neurologists and neuroscientists concluded that there was in fact no mystery disease, and that the patients had all likely suffered from previously known neurological, medical, or psychiatric conditions. The New Brunswick cluster was, one of the paper's authors told the BBC, a "house of cards".
The research paper published last year could have marked the end of a strange chapter in Canadian science. Except, hundreds of the patients disagree. Defiant, fiercely loyal to Marrero, and backed by passionate patient advocates, they argue that the paper is flawed and reject any notion that the cluster might not be real.